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12 people under the age of 30 die from undiagnosed heart conditions each week in the UK alone.

What is Arrhythmogenic Cardiomyopathy?

Arrhythmogenic Cardiomyopathy is a congenital heart condition, which causes cells in the heart muscle to become damaged and develop deposits of fat and scar tissue. An affected heart often cannot pump blood around the body properly when the muscle is put under stress, for example during exercise. The condition is a principal cause of sudden death in young people, many of whom would previously have been regarded as fit and healthy.

Diagnosis of the disease is especially difficult, because the changes to the heart muscle are often very minor. Many of the changes and symptoms of Arrhythmogenic Cardiomyopathy can also be caused by a number of other conditions, many of which are harmless. It is said that 12 people under the age of 30 die from undiagnosed heart conditions each week in the UK alone, and instances of the disease are increasing.

About ACT Charity

​ACT (Arrhythmogenic Cardiomyopathy Trust) was set up to support research projects into the diagnosis and treatment of this disease, for which there is currently no cure. Groundbreaking work is being done in this area, and with your support we can make a huge difference.

Find out more...


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None of this would be possible without your support.

Whether you volunteer, take part in an event or make a donation, your support means our efforts to understand arrythmogenic cardiomyopathy can take flight.

Make a donation

To donate to ACT, please visit our Virgin Giving page.

Fundraise for ACT

Even better is to nominate ACT as the subject of your next fundraising effort.
For details of our upcoming events, please click here.

If you would like set up your own fundraiser, please email 



For more details about ACT please feel free to contact us.

Thank you. We'll get back to you shortly.

ACT is a registered charity: 1176790

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